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We just got a dementia diagnosis

What to do in the first month, and what can wait longer than you think.

Quick answer

What to do in the first month, and what can wait longer than you think.

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Home›By Situation›We just got a dementia diagnosis

The first month after a diagnosis is mostly about slowing down. Very little has to be decided immediately.

Short answer

What to do in the first month, and what can wait longer than you think.

What to do, in order

  1. Slow down. Very little has to be decided this month.
  2. Get the specific diagnosis. Alzheimer's, vascular dementia, Lewy body and frontotemporal dementia progress differently and respond differently to medication.
  3. Do the legal work now, while capacity is clear. Power of attorney, medical power of attorney, directives.
  4. Call the Area Agency on Aging serving your county. Trellis covers the entire Twin Cities metro -- reach it through the Senior LinkAge Line at 1-800-333-2433.
  5. Understand what memory care will require later. Minnesota requires a distinct MDH license -- assisted living facility with dementia care -- not just a disclosure, for any community with a secured dementia unit.

Questions families ask

What is a MnCHOICES assessment and why does it matter for hospital discharge planning?

MnCHOICES is Minnesota's standardized long-term-care needs assessment used to determine whether someone needs a nursing-facility level of care and is functionally eligible for programs like the Elderly Waiver or Alternative Care. Starting this assessment as early as possible during a hospital stay — rather than waiting until after discharge — can shorten the gap before waiver services begin.

My parent has been diagnosed with dementia — where do I start in the Twin Cities?

Start by calling the Senior LinkAge Line (1-800-333-2433), operated by Trellis, for care navigation and options counseling. If a memory care community is eventually needed, confirm it holds MDH's 'assisted living facility with dementia care' license (Minn. Stat. 144G.10, subd. 2(b)) — verify this directly through the MDH Health Care Provider Directory rather than relying on marketing materials.

My parent keeps wandering — what safety and licensing questions should I ask a facility?

Ask directly whether the community holds the 'assisted living facility with dementia care' license, which is legally required for any secured dementia unit and mandates dementia-specific staff training under Minn. Stat. 144G.83. A base assisted living license without this designation is not licensed to operate a secured wandering-prevention unit.

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